Many people find dying an unpalatable topic, but discussing death over dinner – or at anytime – can be a life-changing experience.
For Brendan Moran and his family, talking about his wife’s imminent death was natural and spontaneous. It started when Angie asked two things of her husband – to be cared for at home and to manage her physical pain – and continued right up until her death, three months after the 55-year-old was diagnosed with the rare cancer leiomyosarcoma.
The conversation hasn’t really stopped. In his role as a LifeCircle guide, Brendan now uses his personal experience to support other people who are caring for someone who is dying. He hopes the things he learnt while nursing Angie at home will help others navigate this “uncharted territory” and perhaps start their own important discussions about death.
“My experience is that people tend to not want to talk about death. It’s not an acceptable subject for drawing room conversation. I think it needs to be an acceptable subject for drawing room or after-dinner conversation,” says Brendan. “If it’s not, then when we get to the point when we have to deal with death – our own or somebody else’s – then we just don’t have the capacity, we don’t have the narrative within ourselves.”
Brendan’s daughter, Anna Rutherford, who also helped care for Angie along with her two siblings, says there have been times when friends and family have been so uncomfortable talking about her experience of caring for her mother that she has had to “help people through the conversation”. Says Anna, “People don’t know how to speak about death.”
The discomfort is understandable. Over the years, dying and death have become increasingly medicalised, institutionalised and removed from the home, where most sick and ageing people were once cared for by their families. It is now largely hidden from view, in hospitals and mortuaries, which means people don’t know what to expect and are unprepared when they are confronted with death, whether that’s due to a terminal illness or frailty.
Talking about the end of life can also bring up distressing emotions like fear, anger and anxiety. Even doctors and other health and aged care professionals, who are highly trained and skilled, can find these discussions difficult to have with patients and their families. But, as Brendan says, “Death is something that is part of all of our lives. There’s something about living and owning and being enriched by that sadness that needs to be treasured. And if you can’t talk about it, it’s hard to do that.”
Reducing the silence and stigma around death can have profound benefits not just for the person dying but also their family, friends and those who care for them. For Brendan and his children, having open and honest conversations with each other after the diagnosis meant they were able to not only fulfil Angie’s dying wishes to be cared for at home, it also gave them the opportunity to plan and prepare for the outcome.
That process, he says, helped the whole family come to terms with her death. “In our case, the family came together. And Angie joked almost remorselessly, ‘Is this what it takes to get you guys to come [home] to Canberra?’ because everybody was here. Everyone was right around her and that was immensely important.”
Conversations at the end of Life: PART ONE: Honesty & OPENNESS
(Created with the generous support of the Snow Foundation – watch the who series at “Conversations at the end of life“)
Speak to a LifeCircle guide
“We’re called the guides not because we know how to do it but because we’ve walked a similar path.”
– BRENDAN MORAN, LifeCircle Guide
There are many people you can talk to about the end of life, including your partner, children, family members, friends and colleagues. Health professionals such as your GP, specialists, community nurse, palliative care service or psychologist can also offer support – as can a LifeCircle guide like Brendan.
For more information or to make a booking for a support session, visit LifeCircle.
LifeCircle’s digital platform
With 30 years’ experience in supporting people who are caring for someone through the last stages of life, LifeCircle Australia recognises that there is a gap in the human, social and emotional aspects at the end of life and an overall lack of support for those who are caring.
In response, LifeCircle has launched a digital platform that provides access to information that is typically hard to find and connects people to others who have a lived experience of caring for a dying person. It also enables those who are caring to have a support session with a LifeCircle guide – someone who can share the knowledge and wisdom they have gained through their own experience of caregiving. They can help prepare and support people, gently guiding them through some of the challenging situations they may face, and assist in accessing the information, tools and resources they might need.
LifeCircle’s aim is to help people caring for someone in the last stages of life be better prepared and supported, so they make might the right decisions for themselves, their families and the person they are caring for, allowing them to make the most of their time together.
For more information or to booking a conversation with a guide, visit LifeCircle.
Bupa x LifeCircle partnership
Every day, thousands of Australians are encountering the last stages of life or caring for someone close to them who is – but people do not always experience the last stages of life in the way they would wish and those who are caring for them are often unprepared, unsupported and overwhelmed. Bupa and LifeCircle are trusted partners, working together to help give people more choice and control over their experience – ultimately, enabling them to make the most of their time together, particularly in the last 12-16 weeks of life.
Join our community
LifeCircle has developed a digital platform that provides access to information that is typically hard to find and connects people to others who have a lived experience of caring for a dying person. It also enables those who are caring to have a support session with a LifeCircle guide – someone who can share the knowledge and wisdom they have gained through their own experience of caregiving. They can help prepare and support people – gently guiding them through some of the challenging situations they may face – and assist in accessing the information, tools and resources they might need.
We encourage you to become part of LifeCircle’s community of people committed to caring for those at the end of their lives. By increasing the courage and the confidence of those who are caring we hope that they are better prepared and supported through the experience, and able to make the decisions that are better for them and for the person that they are caring for, so that they can make the most of their time together.