Important conversations at the end of life can make things easier – before and after death.
Caring for her terminally ill mother completely changed Ann Andersen’s perspective on how to ‘do death’: “When it’s my turn and I’m facing it, I’m going to speak openly and I’m not going to be scared to cry. I’m not going to be scared that it’s going to make my children cry, because I want to have those conversations with them. I want their grief to start with me, so I can hug them and let them know it’s going to be okay. I want to be there to comfort my children when they’re starting their grieving process, to be way more open about it all.”
Ann, a registered nurse, believes talking about dying freely and honestly, allows you to “start your grieving process before the person dies; I know I did with Mum.” But starting these conversations can be difficult, especially when relationships are fraught or there is family tension or conflict. The experience of caring for someone at the end of their life can also add to the stress and pressure people are feeling.
For Ann and her brother, Mark, their mother’s cancer diagnosis had the opposite effect, leading them to put their difficulties aside so they could both care for Anita at home once her chemotherapy treatment stopped being effective. “The barriers that had stopped us communicating for so many years were gone – gone in an instant. It had all been forgotten. It didn’t exist anymore,” she says.
“Suddenly, we were a brother and sister who had to look after a dying mum and it was Mum’s wish. We both knew we just had to be there for her. It wasn’t about anything that had gone on in the past or anything else. It was about Mum and doing everything we possibly could to make this good for her.”
Part of ensuring their mother had a ‘good’ death was supporting her through the process of preparing and planning in the last stages of her life. Their openness and willingness to talk about the things that mattered to Anita, including finalising funeral arrangements, eliminated any uncertainty about what should happen and gave her peace of mind that her dying wishes would be fulfilled. It also allowed Ann to stand by the promise she made to her mum to “be there whenever you need me to be”.
In the end, says Ann, Anita took control: “Mum planned her own funeral. I wasn’t too happy to discuss it when she first told me… I said, ‘No, no, I’m not ready to talk about it. And then she tried it again a few days later, so we did. We talked about her funeral, which she had arranged. She ordered her coffin, decided where she was going to have it, she paid for everything and got it all sorted.”
This meant the family, including Anita’s grandchildren, could focus on just being together and making the most of the precious time they had left. Smiling, Ann fondly recalls the last few weeks and days of her mother’s life as they took it in shifts to spend time with her. “There was always someone on the bed, cuddling Mum, making sure she was alright. She was never, ever alone. She was surrounded by love the whole time.”
Conversations at the end of Life: part one
(Created with the generous support of the Snow Foundation – watch the who series at “Conversations at the end of life“)
Speak to aLifeCircle Guide
“When you are caring for someone who is dying everything is evolving around them, the impact of having a guide to support you is substantial. The guides can help you understand your choices and will give you more confidence in the decisions you are making.”
– JAN HATCH, LifeCircle Guide
LifeCircle’s digital platform
With 30 years’ experience in supporting people who are caring for someone through the last stages of life, LifeCircle Australia recognises that there is a gap in the human, social and emotional aspects at the end of life and an overall lack of support for those who are caring.
In response, LifeCircle has launched a digital platform that provides access to information that is typically hard to find and connects people to others who have a lived experience of caring for a dying person. It also enables those who are caring to have a support session with a LifeCircle guide – someone who can share the knowledge and wisdom they have gained through their own experience of caregiving. They can help prepare and support people, gently guiding them through some of the challenging situations they may face, and assist in accessing the information, tools and resources they might need.
LifeCircle’s aim is to help people caring for someone in the last stages of life be better prepared and supported, so they make might the right decisions for themselves, their families and the person they are caring for, allowing them to make the most of their time together.
For more information or to booking a conversation with a guide, visit LifeCircle.
Bupa x LifeCircle partnership
Every day, thousands of Australians are encountering the last stages of life or caring for someone close to them who is – but people do not always experience the last stages of life in the way they would wish and those who are caring for them are often unprepared, unsupported and overwhelmed. Bupa and LifeCircle are trusted partners, working together to help give people more choice and control over their experience – ultimately, enabling them to make the most of their time together, particularly in the last 12-16 weeks of life.